Therapeutic education (ETP) has an important place in the Child Neurology department. This continuous process has made it possible to develop innovative care dedicated to patients and their families with the involvement of families in the co-construction of programs. Still, with a view to improving patient care, various nursing professions and functions have been developed in the department, particularly coordinating nurses, creating a cooperation protocol in epilepsy, and training advanced practice nurses.
The Child Neurology department works closely with the other Creative Child Rehabilitation Center departments to ensure comprehensive and multidisciplinary patient care. The department is interested in all diseases of the nervous system of children and adolescents and also has five major areas of expertise:
- 1 – Epilepsies
- 2 – Leukodystrophies, neurodegenerative diseases, and neuromotor disorders
- 3 – Acute Neurology (emergency, resuscitation, neonatal resuscitation)
- 4 – Neurology Fetal
- 5 – Neurodevelopmental disorders and intellectual disability.
The Child Neurology department also forges links with patient associations, particularly within the framework of rare disease reference centers. The healthcare team is also involved in translational research, clinical research, and research on treatment modalities. This work is part of the overall dynamics of the Creative Child Rehabilitation Center, which has made neurodevelopment and childhood neurological diseases a major focus of care, teaching, and research.
Regional and national expertise and appeal missions
Child Neurology is a medical specialty provided almost exclusively by the public hospital service. At the Creative Child Rehabilitation Center, the pediatric neurology department treats a large number of pathologies, from the rarest to the most common. We work in close collaboration with the neurological functional exploration, pediatric radiology, and child psychiatry departments. The service has missions of care, training, and research for rare diseases:
- 1 – intellectual disabilities from rare causes (Fragile X and other intellectual disabilities linked to the X chromosome)
- 2 – congenital anomalies of the cerebellum
- 3 – rare epilepsies and tuberous sclerosis in Bourneville
The child Neurology and Neurophysiology staff follows the little patient in the diagnostic phase, in the follow-up, and at the start of the rehabilitation process, through multidisciplinary management of neurological pathologies of high diagnostic and therapeutic complexity, which are often rare. The clinical activity takes place within the Child Neurology Department of Creative Child Rehabilitation Center in a ward, day hospital, or outpatient setting, depending on the clinical needs of the little patient.
- 1 – specialist pediatric neuropsychiatric visits;
- 2 – neurological examinations of the child and adolescent;
- 3 – recordings of electroencephalographic examinations of wakefulness and sleep in the 0-18 years range;
- 4 – neurological consultations for children with rare diseases;
- 5 – clinical and instrumental follow-up of children who tested positive in the extended neonatal screening program for metabolic diseases;
- 6 – neuropsychomotor evaluations and therapies;
- 7 – evaluation and diagnosis of neurodevelopmental disorders;
- 8 – psychotherapeutic interventions in children and adolescents;
- 9 – rehabilitation interventions in children with neurological disabilities or in the context of neurodevelopmental disorders